The views of people with intellectual disabilities to their ...

The views of people with intellectual disabilities to their ...

Roy McConkey, University of Ulster Promoting the social inclusion of people with learning disabilities - an impossible dream? What What do do we we mean? mean? What What excludes? excludes? Promoting inclusion What

What makes makes aa difference? difference? Creating Creating Social Social Capital Capital Talking Talking to to People People Being Being accepted accepted What What does does itit mean mean to

to you you to to be be included? included? More More Opportunities Opportunities Community Community Activities Activities What What do do we we mean mean by by inclusion? inclusion? Number

Number friends friends Community Community Activities Activities with with friends friends Visitors Visitors to to home home Community Community Activities Activities with with staff staff

What What do do we we mean? mean? What What excludes? excludes? Promoting inclusion Percentages no friends outside their home 80% 70% 60% 50% 40% 30% 20% 10% 0%

Supported Living Dispersed Supported Living Clustered Small Group Home Residential Home Campus Visitors to home in past month 60% 50% 40% 30% 20%

10% 0% Supported Living Dispersed Supported Living Clustered Small Group Home Residential Home Campus Mean number of activities in last month 6 5.7 5.7 5.5

5.2 5 4.8 4.5 4.1 4 (N=132) (N=103) (N=152) (N=138) (N=95) Clustered Supported Living Dispersed

Supported Living Small Homes Residential Homes Campus Settings McConkey et al, 2005 Likelihood of community participation Dispersed Living (5.7x) Clustered Living (4.1x) Small group Homes (3.8x) Residential Homes (2.8x) Higher Competence (2.4x) McConkey et al, 2005 Barriers to Social Inclusion Barriers to Social Inclusion

Abilities Abilities and and Skills Skills e.g. e.g. Poor Poorknowledge knowledge of ofthe thearea area Staff Staff and andManagement Management e.g.Not e.g.Notallowed allowedto togo go out out alone alone

The The community community The The home home // scheme scheme e.g. e.g.Name Namecalling callingand and bullying bullying e.g e.gFew Few community community facilities facilitiesnearby nearby What

What do do we we mean? mean? What What excludes? excludes? Promoting inclusion What What makes makes aa difference? difference? What What makes makes a a difference? difference? No

challenging behaviours Female Visitors Visitors to to home home Number Number friends friends Activities Activities with with friends friends Can travel independently Sharing with less than 4

people Activities Activities with with staff staff Living in dispersed housing Cant travel independentl y Type of goals Social activities 90% Entertainment activities 34% Sport / Exercise activities 29% Increasing independence 26%

80 Percentage goals met 9 months later another 9 months later 70 60 50 40 30 20 Dispersed Supported Living Clustered Supported Living Small Homes

Residential Homes What helped Staff support 60 Facility available Friends to go with Staff assistance 12 Family support 7 Own transport 18 13 What hindered? No plans made 36 Change mind 27 Facility not suitable 17 Person not able

What What do do we we mean? mean? What What excludes? excludes? Promoting inclusion What What makes makes aa difference? difference? Creating Creating social social capital capital

Percentage Outcomes Present in samples by years 85 Interact Friends 80 Participate 75 70 65 60 55 50 1997 1998 Gardner and Carran 2005

1999 2000 2001 2002 Staff priorities in their job 14 Care Care tasks tasks 12 10 8 6

4 Social Social Inclusion Inclusion tasks tasks 2 0 1 Supported Living 2 Shared Housing 3 Day centres

McConkey & Collins, 2009 Nature of the relationship Promoting Promoting developme developme nt nt Reliable Reliable Ally Ally Providing Providing stability stability Trust Trust Listener Listener

Adviser Adviser Forgiving Forgiving Insightful Insightful Mutual Mutual Gains Gains Creating Social Capital Decision-makers Linking Bridging Bonding Woolcock and Narayan, 2000 Bridges Bridgesto to Social Social Inclusion

Inclusion Barriers Barriersto to Social Social Inclusions Inclusions Culture Culturewithin withinUnified UnifiedSports Sports Personal PersonalDevelopment Development Inclusive Inclusiveand andEqual EqualBonds Bonds Positive PositiveRepresentation Representation

Alliances Alliances Culture outside Unified Sports Segregated lifestyles Negative attitudes to Intellectual Disabilities Low expectations Unified Sports Social Inclusion Work Educatio n Friend s Communicatio Participati n on Housing

Transpor t Healt h Support Support Staff Staff Service Service Managers Managers People People with with aa learning learning disability disability Local communities Local communities

Local Communities Government Policy Further Information r.mcconkey @ulster.ac.uk Attributes of support staff Listening TrustTrustworthy worthy Companion Companion-accompanies accompanies Giving Givingspace space respecting respecting autonomy

autonomy Mutual Mutual Engagemen Engagemen tt Being Being with with YOU, YOU, and and for for YOU YOU Adviser/ Adviser/ Problem Problemsolver solver Available Availablegoes

goes extra mile extra mile Practical Practical Assistance Assistance Creating Creating Opportunitie Opportunitie ss Creating Communities Reviewing service Reviewing service Developing Peoples Developing Peoples procedures and procedures and

Abilities Abilities and and Skills Skills staff staff roles roles Awareness raising in the community Greater access to amenities

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